Yep. There is an expectation from others that you have to constantly “perform” disability in order for it to be valid.

I can’t just not do things; they need doing. Sometimes those things are incredibly active, but I know I’ll pay for those later with a migraine or something else incapacitating. People don’t see that, or the calculations I have to make, they just see the active part.

Also, no amount of rest leads to recovery or feeling replenished, so it doesn’t make sense to me to neglect activity just to lie there in pain anyway.