So sorry to hear. I have worked with many cases similar to yours. First things first, as most have said you need to find someone you trust to be you power of attorney. Depending on where you live in the world this can look different so I would consult with a expert to make sure you are doing it correctly.

This disease is scary because you slowly lose yourself. Depending on how it progresses you may eventually forget everyone you know. You may maintain long term memories but likely your short term memory will be completely shot.

This means you will often be on a short loop of 5-15 minutes as it progresses. Quality of life is highly dependent on very to patient, kind, and understanding caregivers. It extremely exhaustive taking care of a person on this short loop.

Hearing the same story thousands of times. Constantly correcting behavior and a lot of supervision is needed. Often your emotional state is completely dependent on those around you. If everyone else is happy, you will be.

The good news is you may have a long time before this happens. Enjoy life and prepare for the worst. They could find some new treatment soon so you are not without hope. Definitely time for a bucket list.